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Jakob Mitterhauser became a registered member 3 years, 5 months ago
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Do you enjoy informational webinars?
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Christina Cordaro
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Feeling Frustrated When FA Progression Happens
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Katie Griffith
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How often do you plan your doctor’s visits?
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Christina Cordaro
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Feeling Taken for Granted as a Caregiver
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Katie Griffith
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What brand mattress do you recommend to someone living with FA?
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Christina Cordaro
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Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of our community! Please feel free to browse our topics and share your opinion. Remember, me and Frankie, the other moderator, are here to answer any questions you may have, so feel free to reach out to us! @matthew-lafleur, @frankie-perazzola