Fenna Paulus
Forum Replies Created
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Hi!
Does anyone have any updates on this?
When will the FDA approve it and will it be available internationally then?
Kind regards, Fenna -
That sounds wonderful! What will it do? Is it supposed to stop progression or do something else?
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Hi there!
Its been a while since this topic was updated.
Does anyone who takes Etravirine have an update on improvements/how things are going? -
I was eleven when I found out. I really didn’t know what it was back then. But in the years after that I started realising what AF is and what it does to me. That led me to depression, feeling very down. Now, four years later, I know what it is and what it does to me. I handle it better now than I did before but it is still very sad
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I listen to a lot of music! I also start watching those top 10 videos. Like, top 10 mysterious ocean secrets or top 10 creepy places to visit. Those videos are really cool to watch sometimes.
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I don’t like it when people look at me in public because of the way I walk or when I use a wheelchair. It is stupid because most people immediately start assuming things about you when you tell them you have a muscle disease. I wanna be known for who I am and what I do instead of ‘the girl with the muscle disease.’
Sometimes things just don’t work out the way I want them. For example, yesterday. I had a schoolprom. My friends and I made ourselves ready at my friends house. But just only changing made me feel exhausted. And when we arrived at the prom, I had to leave like 30 minutes after because I felt exhausted. Fortunately, I don’t really like my schoolprom so it wasn’t the worst for me but it still sucks.
It also isn’t very nice when my friends are hanging out together without me because they are doing things I can’t. It may not be personal but it is still sad because I feel like I’m out of the group. I feel like AF is controlling our lives and it is. We are young, we should enjoy our lifes without having the big AF pressure haunting us like bad ghosts.