• Brian Rhodes replied to the topic Going back to work in the forum Adults Living with FA 11 months, 2 weeks ago

    I work more than full-time for a small business. For me, working helps me not dwell on FA/me/and what I am losing or have lost.

    I never feel a total grasp on my situation, and having work goals and deadlines has been very valuable in shrugging off self pity.

    I’m not going to lie: the fact I pull paychecks without financially dependent on anyone else or program sharpens the edge for me.

    I’m not saying those reliant on help/SSI/caretakers are inferior. Anyone dealing with FA everyday is tougher than nails.

    For me, the motivation of a career and the dependence of people on me financially helps bring focus to what I’m doing and why I’m doing it. Having FA also helps me shrug off unimportant work barriers as trivial. “ie: You’re upset about the temperature outside?!?! Pfft!”

    In summary, having a job and working everyday has an important mental benefit when dealing with FA.

    • I love your outlook Brian.
      And I love this part of what you said, so I want to emphasize it:
      BEING UNABLE TO WORK DOS NOT MAKE YOUR VALUE ANY LESS; IN FACT, YOU ARE STRONGER THAN MOST FOR YOUR ENDURANCE.
      Thanks for the reply man.
      Do you have any tips that help you conquer any challenges FA brings with work? Like in typing, handwriting, maneuvering around the office, dropping things, or anything else?

    • Love this! Thank you for your perspective!

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