• Brian Rhodes started the topic Best Tips For 'Knowing Your Limits'? in the forum Adults Living with FA 1 year ago

    Hello all!

    I’m a 39 year old male diagnosed with Type 1 Diabetes when I was 18 (in 1998). DX’d with FA in 2009.

    I am still pretty mobile, using a wheeled walker, and at present a wheelchair. I’ve got lots of kids and a great wife who like to keep life active.

    I am in the chair because I recently fell and messed up my ankle and bummed up the other knee. Both injuries together make walking not possible! I’m stupidly prideful and like to think ‘mind over matter’ is valid and I should just suck it up and ‘grit it out’, but after three weeks in this chair – I know ‘pride’ is just another name for ‘vanity’. Yeesh.

    So my question: how do you know your limits? Especially in regards to progression. When do you make ‘the call’ that driving a car is not healthy, or that you belong in a chair/not a rollator?

    I greatly respect you all. I know the utter frustration of this disease and how it holds us back.

    • Welcome Brian! I really appreciate that you linked the terms ‘pride’ and ‘vanity.’ I know how true that is!
      As far as limits, when I was young and faced rapid progression, I chose to be fearful of the future. So instead of focusing on what I still could do, like drive or walk, I lived in constant fear that one day I wouldn’t be able to do either, so I gave up trying.
      Nowadays, I try to be more focused on the RIGHT NOW. Maybe at some point I won’t be able to do ___ but for now, I will try my hardest.
      I think it’s important to both try your hardest and acknowledge that you may need help…
      And that’s a difficult conundrum!

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