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Off topic but I need help
Hello, I am a 23-year-old Italian boy suffering from Friedrich’s Atassia who would like to come to the USA to start the omaveloxone treatment that should be marketed soon, but I would always need a family to assist me or a center because I am not independent. If you could even provide me with contacts or information if you have any because I don’t really know who to contact, thank you very much
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1 Reply
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Hello, Davide! If you reach out to the Freidreich’s Ataxia Research Alliance (FARA), they may be able to assist you. Here is their website with some contact information:
https://www.curefa.org/contact
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