Friedreich’s Ataxia News Forums Forums Additional Resources 5 ways to make your voice as a patient advocate heard in 2023!

  • 5 ways to make your voice as a patient advocate heard in 2023!

    Posted by christina-cordaro on February 7, 2023 at 9:00 am

    Rare Disease Day is at the end of this month, on February 28th. Although every day is important to raise awareness of Friedreich’s Ataxia, this dedicated day is reserved to make an impact on the 300 million people globally who live with a rare disease.

    Don’t know where to start? The National Organization for Rare Diseases (NORD) lists ways to get involved in rare disease advocacy.

    How will you be participating in Rare Disease Day this year?

    christina-cordaro replied 1 year, 2 months ago 0 Member · 0 Replies
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