The Rollz Motion is a rollator and wheelchair in one. It can easily be transformed from a rollator into a wheelchair (and vice versa). With this device, you won’t have to worry about energy when going out since you will have both options readily available.
In my latest article, I dream about what my Christmas list would look like as a grown up who is a caregiver. It feels like the magic of Christmas gets lost year by year as life seems to get harder and more unfair. If you could make a grown up Christmas list, what would you put on it?
My husband is in later stages of FA. Currently we continue to share a bed. We have a California king size sleep number bed with no adaptive elevated head or foot of the bed. He does use a side rail that is anchored on the floor and a trapeze bar to allow pivoting his lower extremities in and out of bed. Obviously he requires about moderate…[Read more]
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of our c…[Read more]
I am 62 and balance was the first FA symptom I noticed around 57 years of age.
I get around the house without the use of an aid but use a walker or a cane outside now. I hold on tight when I go down stairs as I misjudge foot placement quite frequently and use my arms to catch myself if I miss a step and am going to fall.
The holiday season can be a busy time full of decorating, shopping, and family traditions. While all of those things can be fun and meaningful, sometimes on top of taking care of a loved one with FA, it can just all feel like too much. Over time and as symptoms progress, sometimes it is a good idea to reevaluate traditions and make sure that they…[Read more]
Countdown to Christmas- less than 2 weeks!! Are you feeling prepared? I have to admit that this year feels challenging to me. I am overwhelmed and adding more things to my to do list definitely doesn’t help! I have tried to focus on the day ahead instead of looking too far into the future. Also, I am trying to delegate when I can and decide if a…[Read more]
This is Melinda Younes I am texting you to let you know I don’t have Freidreichs Ataxia. I do have Ataxia but I have Parkinson’s. I seen a neurologist that specializes in movement disorders. She is positive I have Parkinson’s with Ataxia. I am so glad to hear about Freidreichs Ataxia and I have have been very vocal about y’all here in Georgia…[Read more]
This month is just flying by! As you prepare for the upcoming holiday, how are you feeling about it? These past couple of years have been so overwhelming and having a loved one with health needs can make traveling even more of a stressor. Do you plan to stay home for the holidays or travel to visit family or friends? If you plan to travel, please…[Read more]
The holiday season is full of emotions. It seems to bring what’s under the surface to the top. While the media portrays it as the most wonderful time of the year, for many people, it isn’t. Having a loved one who lives with a life-altering disability like FA is a heavy load to bear. Comparison can cause us to have discontent with our cir…[Read more]
FARA Ambassador, Ph.D. Candidate, FA Advocate and patient, Shandra Trantham is featured in the 24-Year-Old Researches Treatment for Her Own Crippling Disease: ‘I’m in a Race Against Time’ article on People.com.
Read about how living with Friedreich’s Ataxia does not stop Shandra from pursuing her career, dream, and passion for finding a…[Read more]
December is here and the countdown to Christmas has begun! Are you finished with your shopping or more of a last-minute shopper? What is on your family’s Christmas list this year? I know that a cure for FA is at the top of mine!!
These two events can be tradition for people every year. Whether it’s getting together for the family to shop the sales, or spending the day behind the computer to buy the best deals, it’s always something to look forward to.
For those of you who celebrate Thanksgiving, how did you spend both events afterward? Did the pandemic affect it at all?
Friedreich’s Ataxia News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.