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Who in your life is the most supportive when it comes to understanding FA?
For me, my husband, Justin, is the most understanding. He empathizes with what I go through on a daily basis, sees my progression of symptoms turn for the worse, and simply listens to me when I explain what I am feeling and experiencing.
I know not everyone is going to fully understand or try to understand, but it can be hard and frustrating when you try to do this with other people, especially those in your close family and friends.
Do you have someone close to you who fully understands the disease?
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3 Replies
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After an ER Dr tried and nearly succeeded in killing my wife. It left her severely disabled. To the point when she has been in the hospital for various reasons she can’t yell for help and she can’t press the nurse button….which wouldn’t matter much anyway since most people can’t understand her when she speaks….that leaves me to have to be with her at all times. Would be nice if someone cared enough to be able to relieve me , if nothing else so I could go eat , but that clearly isn’t going to happen.
Far too often I catch nurses trying to do something they shouldn’t, whether wrong meds or food etc.,so just leaving her alone is a scary proposition.
Since the pos Dr that tried to kill her , I make sure I fully understand every little thing they do in the hospital ….BEFORE they do it…..example …she had a kidney stone and infection and it caused her BP to be very low…since she was on BP meds for high BP , a nurse came in to give her her normal BP meds…if I wouldn’t have stopped it who knows what could have happened. Also her first meal while having her kidney stone, contained everything that is the worst thing you can give to someone with kidney stones, like chocolate.
Count your blessings if you can at least have 2 supportive and understanding people to be there….FA or not.
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Hi Clester, I am sorry to hear about all of your wife’s hardships with doctors, nurses and hospitals. She is luckt to have a supportive husband like you by her side!
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Support and unconditional love and help is so important. Who is someone you can always rely on?
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