Friedreich’s Ataxia News Community Forums Living With FA Who has experience with spinal surgery?

  • Who has experience with spinal surgery?

    Posted by ChristinaC on July 9, 2025 at 8:19 am

    A curvature of the spine, scoliosis, can be a symptom of FA, and corrective surgery, such as spinal fusion, can decrease the severity of this.

    Has anyone with FA or a parent of a loved one ever received spinal fusion surgery? What types of outcomes are there to prepare for-for example, what is the recovery process like, what are the results with mobility, etc.? What are some positive and negative experiences you have had?

    ChristinaC replied 1 month, 2 weeks ago 3 Members · 4 Replies
  • 4 Replies
  • dean909

    Member
    January 27, 2026 at 5:29 am

    Although this is an old discussion, it is a topic that remains relevant for us. I underwent fusion surgery with Dr. Michael Wheeler, who specializes in minimally invasive spine surgery in Dallas, and I can say that the result exceeded my expectations. Mobility is different after you are straightened out; you feel more rigid at first, but the chronic pain has almost completely disappeared. The biggest advantage was the minimally invasive approach; I was discharged much sooner than patients who undergo open fusion.

    • ChristinaC

      Member
      January 27, 2026 at 3:02 pm

      Dean- I am so happy that your surgery was a success, and that you don’t experience as much chronic pain!

  • n6te088

    Member
    February 12, 2026 at 5:08 am

    In my own experience, I know this post is old, but I wanted to share for anyone else looking into this. I actually had my surgery with Dr. Siddiqui, an orthopedic Houston spine surgeon, and it was a great experience.

    He helped me specifically by using a minimally invasive technique called percutaneous screw fixation. Instead of the traditional open surgery that requires a large incision and cutting through back muscles, he used tiny incisions and X-ray guidance to stabilize my spine. Because he didn’t have to strip the muscle away from the bone, my blood loss was minimal and the post-op pain was much lower than I expected.

    I was back to my normal routine in about 6-8 months, which felt like a miracle given how much I was struggling before. He didn’t just fix the hardware; he preserved the healthy tissue around it, which is why my recovery was so smooth.

    • ChristinaC

      Member
      February 13, 2026 at 10:10 am

      Thank you for sharing your story! I am glad you had such a postive and successful experience, and that you were back to your normal routine in about 6-8 months!

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