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What is something that you like to do to raise awareness of FA?
In Elizabeth Hamiltons’s latest column on FA News, she discusses that even though we live with a rare disease, we all have unique ways to raise awareness of Friedreich’s Ataxia.
For example, she handmade a washcloth for her 12 year old, Amelia who has FA and was experiencing dexterity issues. Recently, she handmade a lap blanket for a big event coming up that benefits FARA (Friedreich’s Ataxia Research Alliance). Doing both of these things is good for her emotionally and physically, and pays her contributions to FA research with her stamp on it.
Is there anything creative that you bring value to the FA Community in your own, unique way?
Below is the link to Elizabeth’s column:
https://friedreichsataxianews.com/columns/fa-journey-everyone-something-offer/
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