Matthew's life doesn’t look like what he imagined when he was an active Cajun boy. Once diagnosed at age 11 with Friedreich’s ataxia, he threw himself into books, writing, and studies, achieving a bachelor’s degree in English and a master’s degree in mental health counseling. Writing a column at Friedreich’s Ataxia News and serving as the associate director of columns for its parent company BioNews is a perfect combination of his two degrees. He notes life’s small, often overlooked successes in his column. In progressive disability, Matt tries to notice his little victories, hoping that others notice their own ... or something like that.The importance of finding hope with FA, even after facing setbacks
Note: This column describes the author’s and interviewee’s own experiences with Skyclarys (omaveloxolone). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Hope is crucial for those in the Friedreich’s ataxia (FA) community. For me, facing a rare degenerative…