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I’m approaching what can easily be labeled the midpoint of life for the so-called average person. Of course, such averages rarely take rare disease into account. But even without the progression of Friedreich’s ataxia (FA), living to (almost) 40 is no easy task. I mean, just think about…

Friedreich’s ataxia (FA) changed every aspect of me — the emotional, the physical, the spiritual, and even my personality. Pre-FA Kendall was very different from FA Kendall. I can categorize my friends into those who knew me before my diagnosis and those who met me after. I am blessed to…

I’ve never thought of myself as especially strong, or as someone who could identify with a warrior’s personality. Because I face the progressively debilitating disorder Friedreich’s ataxia, I sadly realized that my physical strength, like the rest of my capabilities, will dwindle over time much more quickly than…

Religion and spirituality have always been tricky subjects for me. I was raised in a traditional Italian and Catholic household where baptisms, communions, confirmations, and the rest of the sacraments were highly celebrated. I was pushed to attend Mass every Sunday and holiday, and to volunteer or serve…

Welcome back! I wish we could have this conversation face-to-face over a cup of coffee. For now, we’ll have to settle for this virtual space, where we can connect in a different, but hopefully meaningful, way. As you’ve probably done, I’ve often said in the last year, “I can’t wait…

I am blessed to be Mom to my 6-year-old son, Brooks, and my 3-year-old daughter, Collins. I am also disabled. I use a walker because my Friedreich’s ataxia (FA) symptoms have progressed to the point that I can’t walk unassisted. The other day, while Brooks and Collins were playing…

“I never thought I’d see this,” I thought, looking at the surreal scene outside my van’s window. Snow-covered yards and roofs on familiar houses in my hometown were remarkable to me, although living with Friedreich’s ataxia (FA), I should probably be used to the unexpected by now. …

“Can you send help up, preferably a gentleman?” I asked as I lay on the cold tile floor, mostly motionless and without clothes — only a wet towel. Although my body was at a standstill and most of my mental capacity was consumed by…

The endless lockdowns and life-altering changes we’ve experienced due to the global health crisis have shown the disabled community that society is capable of becoming accessible. Everyday jobs can be done at home, grocery delivery is prioritized and encouraged, and restaurants and shops are willing to…

I love springtime in Texas, and all that comes with it: baseball season, wildflowers, rodeo season, longer days, warmer sunshine, home projects, live music at local restaurants, and more. Everything feels happier and more vibrant. This year, springtime feels different. We had a historic and catastrophic snowstorm at the end…

One and one always equals two, at least that’s how most people see it. Sometimes simple, concrete facts are comforting, especially for people diagnosed with progressive diseases, where we can’t trust our own abilities day-to-day. But I believe my ability to thrive depends on being able to see the world…

I recently heard an interview with a local high school principal about the message he is sharing with his staff and students during these unprecedentedly hard times of COVID-19. In response to the pandemic, he said we can either “rise and whine or rise and shine.” How profound and…