Columns

With Thanksgiving just days away, I’ve been participating in many exercises in which I’ve had to mention things I’m thankful for. This is a familiar routine this time of year. As I’ve aged and Friedreich’s ataxia (FA) has progressed, however, I’ve noticed that the list of things I’m…

With Thanksgiving approaching, my family and I have been talking about what we’re thankful for. My 5-year-old daughter, Collins, is thankful for adorable things like her cat named Banana, our swimming pool, her school playground, horses, and of course, her brother, Mommy, and Daddy. My 8-year-old son, Brooks, is thankful…

Thanksgiving is an important holiday in the U.S., and as it’s just over a week away, it’s sparking many ideas for writing topics. (If you read my last column, you know I appreciate all the help I can get with content ideas.) November feels like the start of the…

What do election years and Friedreich’s ataxia (FA) have in common? A lot more than you’d think. Let me explain. As I’m writing this column, it’s midterms election week, so it’s very front of mind, just as FA has been for me for the last nine years. This got…

As I was getting ready for breakfast a few mornings ago and listening to a shuffle of random songs, I recognized one that I hadn’t heard in years: “No Hard Feelings” by The Avett Brothers. For the first time in quite a while, the opening ran…

Battling a degenerative disease, especially one so rare that most people haven’t heard of it, can be a lonely journey. Even our closest friends and family members, who know us better than anyone, can only imagine and sympathize, as they don’t face the same physical struggles. Unless you have…

I rarely have the foresight to make a note about something I want to write about. Instead, I often sit and stare at a blank document. While sitting and staring, I replay the experiences I’ve had over recent weeks, trying to identify something interesting to dig into. Although I never…

The effects of Friedreich’s ataxia (FA) are vicious, relentless, widespread, and undeniable. FA uses my own body to slowly defeat me physically. The disease has taken away so much from me and given me a lot of hardship. I guess you could say that by many definitions, I am…

This too shall pass? The human experience is such a beautifully complicated journey. We all learn, grow, develop opinions, follow tendencies, change, adapt, and change some more. One common catalyst that shapes who we are is adversity. Everyone experiences adversity in one way, shape, or form, and that forever changes…

Not long ago, I had the pleasure of recording a Zoom session with fellow Friedreich’s Ataxia News columnist Kendall Harvey. Kendall wrote a column that inspired my podcast co-host, Kyle Bryant, and me to dig a little deeper and share Kendall’s perspective with our listeners. Kendall, Kyle, and…

Last week, a college buddy of mine, Max Harrington, filled in as my caregiver so that I could take a memorable trip to New York City. We were there to attend the annual MM+M Awards, which honor achievements in healthcare marketing and communications. I was joined by several…

In August 2013, months of questions, fears, and wild speculation came to a shocking conclusion. The changes to my body and abilities were explained: I had Friedreich’s ataxia (FA). The days, weeks, and months after receiving that diagnosis were some of the strangest of my life. As I…