Hello, and may I be the first to wish you a happy fall! Of all the things I find pleasure in, pumpkins and changing leaves are close to the top. Even if fall isn’t your favorite season, I hope you can find some joy in the beauty that nature brings…
Hope from Home - a Column by Katie Griffith
Let Them Try Out Their Wings
Happy August! I don’t know about where you live, but here in Alabama, instead of waiting until after Labor Day, school starts early this month. While August doesn’t tend to bring cooler temperatures in these parts, I hope that this time of year will bring not only much-needed routines but…
‘We’re All in This Together’
Welcome, friends! I hope you are staying cool and spending some quality time with those you love. I am so thankful for you and the part you play in this community. It’s July and super hot here in Alabama, where I live. My family and I have probably been watching…
Welcome! Pull up a chair and pour yourself a glass of something nice and refreshing. You deserve some time to rest and reflect on what you need today. As a caregiver to a son with Friedreich’s ataxia (FA), my constant desire is to find ways to be helpful to him…
Hello, friends, old and new! Spring is coming to a close, and the days are getting longer and hotter down here in Alabama. I hope that you have some time today to reflect and be proud of how far you have come. You are worth celebrating, and the world would…
Hello, friends! I hope you are enjoying some fresh spring air and the sun is shining down on you. Even if it’s dark and rainy, you are worthy of all the beautiful things, and I am so happy to welcome you back. My son Noah was diagnosed a few years…
Welcome back! I wish we could have this conversation face-to-face over a cup of coffee. For now, we’ll have to settle for this virtual space, where we can connect in a different, but hopefully meaningful, way. As you’ve probably done, I’ve often said in the last year, “I can’t wait…
Hello, I am so glad you are here! Take off your shoes, prop up your feet, and take a deep breath. You are welcome just as you are. Some days are permanently etched into our minds. One that will always stand out to me is Jan. 22, 2018. Then 16…
Recent Posts
- Redefining independence when faced with Friedreich’s ataxia progression
- Wearable sensors accurately detect FA in walking test, study shows
- I can honor my heritage by bravely managing my FA symptoms
- When I focus on what I can control, problems become opportunities
- Researchers spot new ultrasound patterns across peripheral nerves in FA