The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to…
Articles by Mary Chapman
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
People with Friedreich’s ataxia (FA) are being urged to join the Friedreich’s Ataxia Global Patient Registry (FAGPR) to…
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
A collaborative effort once again will fund a grant program that provides fitness-promoting adaptive cycling equipment to Friedreich’s ataxia…
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…