| Short Bio |
Just a dad with my little girl who has this disease. Feeling like I would love to help anyone who is in this boat. By the way, knowing full well all of our prognosis. We will all die of something. I truly hope anyone who may read this understands that I am only possibly highlighting the obvious. We will all die. My little girl happens to know what will probably be her ultimate demise. As do I, of course. This disease is almost a blessing. ALMOST. It has been a reminder of how fragile and precious our time is here. WOW! I have just deleted a bunch of stuff that came to me, sincerely.
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| How long have you or the person that you are caring for had FA? |
20 years
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