• Tania Douglas became a registered member 9 months, 4 weeks ago

    • HeyTania,
      Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of our community! Please feel free to browse our topics and share your opinion. Remember, me and Frankie, the other moderator, are here to answer any questions you may have, so feel free to reach out to us! @matthew-lafleur, @frankie-perazzola

      • Thanks Matt,
        Thank you for having me. My 17 yo daughter has just been diagnosed with FA so we are new to all this. I’m not the type of person who sits back though so I have plans to get the FA word out as much as I can in our community and raise funds for research etc.

        Thank you for creating this space it has been so helpful for us to get some idea on what we are up against.

          • Welcome Tania. It is awesome to hear you have a feisty spirit- your daughter needs that! Please let her know that if she joins the forums herself, or if she or you want, I can get her in touch with some FAers her age from all over the world!
            • Also Tania, sorry for missing this, but I didn’t make this forum! The company BioNews did and I am the lucky guy they let be one of the moderators!
          • Hi Tania! Thank you for signing up and welcome to the FA forum!

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