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Nickname

robert-rhodes
What best describes you?

Patient
Short Bio

I’m a lifelong Oklahoman.  I am also employed full-time as a mechanical engineer in a manufacturing environment.  My employer makes ball valves for the oil and gas industry.  Transportation and storage – not drilling.
How long have you or the person that you are caring for had FA?

Symptoms since infancy. Official diagnosed in 2014.
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