• Hey Matt, glad to hear you have a service dog, what breed is this dog? My daughter-in-law is very involved with service dog training.

  • Mark Potter posted a new activity comment 10 months, 1 week ago

    Matt, thanks for allowing me to join. This is a very rare disease and I know of only one individual who has been confirmed to have it. I have been working in Gene Therapy for some time and we often concentrate our efforts on rare ” orphan diseases”. These forums allow others (myself) to better understand the daily obstacles encountered by people…[Read more]

  • Mark Potter became a registered member 10 months, 1 week ago

    • Hey Mark,
      Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of our c…[Read more]

      • Matt, thanks for allowing me to join. This is a very rare disease and I know of only one individual who has been confirmed to have it. I have been working in Gene Therapy for some time and we often concentrate our efforts on rare ” orphan diseases”. These forums allow others (myself) to better understand the daily obstacles encountered by people…

        [Read more]

    • Hi Mark! Thank you for signing up and welcome to the FA forum!

  • Mark Potter's profile was updated 10 months, 1 week ago