• My husband has used a power wheelchair for mobility for almost 20 years. He has late onset which progresses very slowly.
    He requires an elevated toilet seat, gait belt, and grab bars to transfer. He uses a shower chair that reclines for bathing. He also requires bilateral bed rails and a trapeze bar for bed mobility.
    We have had many varied…[Read more]

  • CG-KC replied to the topic Beds in the forum Assistive Device Usage 7 months, 3 weeks ago

    My husband has good strength but not coordination. For years we had a heavy oak dresser across from his side of the bed. We attached a small grab bar horizontally on top of the dresser. He would use that and the armrest of the power chair to pull himself over to the wheelchair.

  • CG-KC replied to the topic Beds in the forum Assistive Device Usage 7 months, 4 weeks ago

    My husband is in later stages of FA. Currently we continue to share a bed. We have a California king size sleep number bed with no adaptive elevated head or foot of the bed. He does use a side rail that is anchored on the floor and a trapeze bar to allow pivoting his lower extremities in and out of bed. Obviously he requires about moderate…[Read more]

  • CG-KC became a registered member 7 months, 4 weeks ago

    • Hi CG,
      Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of our c…[Read more]

    • Welcome to the FA Forums! We are so glad you have joined us and look forward to hearing your perspective.

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