katie replied to the topic Check in with reopening in the forum Coronavirus (COVID-19) and FA 1 year, 10 months ago
vaccine passports for a vaccine without fda approval that has rarely been studied in humans before 2020.. makes no sense.
katie replied to the topic Vaccine in the forum Coronavirus (COVID-19) and FA 1 year, 10 months ago
as someone with a chronic illness that might someday be treated with mRNA technology, i think its potential sounds very exciting but until it has a few years of positive results in humans, i’ll keep masking and distancing.
i’d be more comfortable with the Johnson and Johnson vaccine because it is older technology that has been studied longer. i’d…[Read more]
katie replied to the topic COVID19 Vaccine and FA in the forum Coronavirus (COVID-19) and FA 1 year, 10 months ago
Since mRNA vaccines have rarely been studied in humans before 2020, as exciting as the potential of this tech is, I’d skip it in favor of johnson&johnson tech which is older. one way to check out how your individual risk:
katie replied to the topic Bedsores in the forum Living with FA 2 years ago
i have had a sensitive spot on the heel of my foot that i’ve been keeping an eye on for several years. i put a lambswool blanket at the foot of my bed and the skin has never broken.
another spot that did break down healed in days with walgreens brand hydrogel burn pad.
katie replied to the topic Wheelchair Preference in the forum Assistive Device Usage 2 years, 2 months ago
i’ve had a rigid ki tsunami for nearly ten years. (i have a forward brand seat cushion and another brand for the back cushion.) the last two chairs built for me had to be sent back. in order to do transfers i have to be able to get the chair close to the couch, for example, and folding chairs have an angle on leg rests that makes this impossible.…[Read more]
katie replied to the topic Shower Chair in the forum Assistive Device Usage 3 years, 3 months ago
i’ve had it for two years now. worth every penny.
katie became a registered member 3 years, 4 months ago
katie's profile was updated 3 years, 4 months ago
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an impor…