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Ersley Johnson

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@ersley-johnson

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    Ersley Johnson replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 10 months ago

    This is excellent! Thank you Gian.

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    Ersley Johnson replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 10 months ago

    This Etravirine sounds very positive. I look forward to hearing more positive results.

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    Ersley Johnson replied to the topic Supplements and pre-workout in the forum Living with FA 1 year, 10 months ago

    Excellent! I feel you’ll really like it. I dropped protein bars and powders as I live a very Ketogenic lifestyle and consume a good amount of protein. Good luck!

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    Ersley Johnson replied to the topic Supplements and pre-workout in the forum Living with FA 1 year, 10 months ago

    Hello Egan. BCAA’s stands for “Branch-Chain Amino Acids.” I love their effects as someone who loves to workout.

    • Profile picture of Frankie Perazzola
      Frankie Perazzola replied 1 year, 10 months ago

      Thank you for answering!! Yes, BCAA’s are wonderful!

  • Profile picture of Ersley Johnson

    Ersley Johnson replied to the topic Supplements and pre-workout in the forum Living with FA 1 year, 10 months ago

    I use BCAAs, Tumeric Curcumin, and some times Fish oil capsules. BCAAs are the most important.

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    Ersley Johnson replied to the topic Superheroes/Comics in the forum Living with FA 1 year, 10 months ago

    Mine would have to be “Dr. Manhattan” from the DC comic book series “The Watchmen.”
    His origin is terrifying as he was disintegrated in an Intrinsic Field Generator and by
    sheer strength of will he later reconstructs his body, returning with extremely powerful
    abilities. He was given the name Dr. Manhattan by the US Government after the Manhattan Project.

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    Ersley Johnson replied to the topic Siblings in the forum Relationships & FA 1 year, 10 months ago

    Thanks Matthew. It was rough seeing my mother die at only 10 years of age. I’m really hoping Stem Cell treatments will become common place and help tons of people afflicted with this disease.

  • Profile picture of Ersley Johnson

    Ersley Johnson replied to the topic Siblings in the forum Relationships & FA 1 year, 10 months ago

    Hi Matthew. My mother’s family was very big. All of which came from Honduras. Most of them had FA and died from it.
    I have two Uncles who never got the disease. One of which my Uncle Jesse has a large family and none of his children
    never got FA. I have no brothers or sisters and grew up with my three cousins and my Uncle Cisco who raised us…[Read more]

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    Ersley Johnson replied to the topic Siblings in the forum Relationships & FA 1 year, 10 months ago

    I find this to be a very interesting and powerful post. I have no children due to the fact i’m terrified of ever passing on FA to my child or children. I couldn’t bear to watch my child die the way my mother, her sister, and a few of my uncles did. Just recently, I’ve gotten back with a girlfriend I use to date 20 years ago, and my heart sank…[Read more]

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    Ersley Johnson posted a new activity comment 1 year, 10 months ago

    Thank you for the welcome.

    • Profile picture of Ersley Johnson

      Ersley Johnson posted a new activity comment 1 year, 10 months ago

      Thanks for having me in this group.

      • Profile picture of Ersley Johnson

        Ersley Johnson became a registered member 1 year, 10 months ago

        • Profile picture of Matt Lafleur
          Matt Lafleur replied 1 year, 10 months ago

          Hey Ersley
          Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of ou…[Read more]

        • Profile picture of Frankie Perazzola
          Frankie Perazzola replied 1 year, 10 months ago

          Hey Ersley! Thank you for signing up and welcome to the FA Forum!

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