@brittneypiper
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Brittney Piper replied to the topic Medication in the forum Parents & Caregivers of Those with FA 3 years, 10 months ago
My two daughters been diagnosed 5 years ago and they were both taking She is taking Idebenona but many at times they cried to an extend that i will rush to the doctor with them most especially when the doctor can’t show up due to his time schedule with other patients. They both had spinal code problem and this my doctor gave me a Medical Marijuana…[Read more]
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Brittney Piper became a registered member 3 years, 10 months ago
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Hi Brittney! Thank you for signing up and welcome to the FA forum!
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Hey Brittney,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part…[Read more]
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Brittney, thank you for sharing your own personal experience with CBD. I’m so happy it’s bee helpful with your daughters.