• I don’t and I’m a pretty negative person I wish I could be positive and confident and just happy. Sometimes I really wish I could just some how leave, i hate that my husband and our girls have to watch me detirerate, things seem come and go in stags my chocking started to become noticeable 2010( it càme years before obviously but not enough for…[Read more]

  • I’ve been on amitriptyline for about 6 years each time my GP puts the dose up my urgency lessons but the past few months it’s gotten so much worse just during the day time, I have never really had I to go at night we’ll when I was pregnant i did, but anyway my husband has been putting towels folded up to sit on. It’s pretty embarrassing I feel…[Read more]

  • Sadly I don’t think he wants to fix things.. I seem to make it worse everytime I try to talk to him about it. He said he didn’t bond emotionally, and I know it’s 100‰ my fault and our foundation stated out horribly but I’m not that dishonest person any more. I’ve grown up and matured.I think I just need to give him space for a while

  • I’m Victoria I’m 37 with two daughters 18 and 14  was diagnosed when i was 14 and was wheelchair bound 5 months after i turned 15. I got pregnant when I was 17 with my first daughter and was engaged 6 months later and married a year later. It started out amazingly I thought I was happy and In love… I don’t like going back and talk about my past…[Read more]

  • That’s beautiful

  • I’d like to hear more about this. My speech has gotten so bad lately even my husband and kids are having a lot of trouble understanding me. My husband has gotten good at lip reading. Well
    As long as there’s light. I think going to a therapist would be good for me, but my speech l to far gone it’s not really possible

  • Victoria posted a new activity comment 2 months, 1 week ago

    Thank you for the welcome! I’m not to sure yet how to post or anything but I’m sure I’ll figure it out soon enough

  • Victoria became a registered member 2 months, 1 week ago

    • Welcome, Victoria! We are glad you have joined the FA Forums and look forward to hearing from your perspective.

      • Thank you for the welcome! I’m not to sure yet how to post or anything but I’m sure I’ll figure it out soon enough

    • Hi Victoria,
      Thank you for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part…[Read more]

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