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Nickname

annie-midgley
What best describes you?

Patient
Short Bio

I have SCA 14 and there are 20 plus people with this type of hereditary ataxia in the world.  It’s surprising but 15 of us have contact.  However it’s still isolating.  I have received so much support fro FARA in Queensland Australia and would love to contribute and listen to ideas from others.
How long have you or the person that you are caring for had FA?

45 years
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