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Last Name

Hannah
Nickname

Gina Hannah
What best describes you?

Family
Short Bio

My husband was diagnosed with FA a few years ago after genetic testing confirmed what we were seeing in symptoms. His older brother also has the disease. We are working to get the new drug, Skyclarys, in hopes it will slow progression.
How long have you or the person that you are caring for had FA?

Symptoms first presented in 2016; confirmed with genetic testing in 2020.
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