• Hi everyone,

    @gunnhild sorry to trouble you, hope you are continuing to see improvements on Etravirine. You mentioned previously Etravirine gave others great walking improvements… can you elaborate further here or provide any more info / examples..thank you

  • Aaron Travers posted a new activity comment 1 year, 6 months ago

    Thank you very much Frankie, very interesting posts about Etravirine🤞

    • Aaron Travers posted a new activity comment 1 year, 6 months ago

      Hey Matthew,

      Thank you for your message, I am here on behalf of my 12 year old daughter who has FA. Very interested in HIV drug and let’s hope the positive posts continue. We have liaised with the Italian company and they say they are trying to raise funds to start Human trials. Speak soon & keep positive. Regards Aaron

      • Aaron Travers became a registered member 1 year, 6 months ago

        • Hey Aaron,
          Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of ou…[Read more]

        • Hey Aaron! Thank you for signing up and welcome to the FA forum!