• Additional Resources

  Rare Disease Week

  Posted by Community Member on May 17, 2021 at 2:25 pm

  FA Awareness Day just took place this past weekend on May 15th. Now it’s time to start gear up for Rare Disease Week hosted by Every Life Foundation.

  Rare Disease Week on Capitol Hill brings together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.

  This year, Rare Disease Week will be going virtual and will be held July 14th through July 22nd and will include the same opportunities as in-person Rare Disease Week, plus more.

  To register and learn more:

  https://everylifefoundation.org/rare-advocates/rare-disease-week/

   

  Community Member replied 1 Member · 0 Replies

  • advocacy
  • awareness
  • Rare Disease Week
• 0 Replies

Log In to Reply