• Birthdays and FA

    Posted by Community Member on August 21, 2026 at 7:52 am

    This upcoming Monday (8/24) is my 36th birthday. Growing up, I always used to look forward to the special day, being a new year and a fresh start. But since I received my FA diagnosis 15 years ago, my perspective has changed.

    As years pass, I am reminded more and more of my disease’s progression and how different my life continues to become. I thought that time would make it easier to handle FA, but new challenges and obstacles always seem to arise all the time.

    Do you have the same perspective on birthdays? Has your perspective changed since being diagnosed with FA?

    Community Member replied 3 Members · 4 Replies
  • 4 Replies
  • Community Member

    Member

    Happy birthday Christina! I feel that I tend to want to rush life more because of FA and fit everything I want to do before the time I lose my walking. When I turned 24 last month, I was frustrated because I thought i’d be married with kids by now instead of 2 weeks fresh out of a 2 year relationship lol. But what I have learned is how important it is to surround myself with positive people that lift my spirits. Because FA is so challenging, we need a positive support system. So I can happily report because of my break-up, I now only have positive people in my life. Happiness is most important to me and as we get older, we get wiser and learn more lessons. Thats a win to celebrate with birthdays.

    • Community Member

      Member

      Thank you so much, Kiersten!

      I agree, happiness and a great and positive support system truly makes a difference when dealing with FA. Especially when those just “get” what you are going through, and you don’t have to constantly explain yourself.

      It sounds like the break-up was the right/best thing for you to move forward and find your people and happiness.

  • Community Member

    Member

    Very wise Kiersten. Happy birthday Christina!! I agree with you about birthdays. FA never gets easier but hopefully our perspective does change how we manage FA. We have to remain positive and hopeful. Celebrate your birthday enjoy it with your friends and family.

    • Community Member

      Member

      Thank you so much, Dave! It was a great day 🙂

      And I agree, life is too short to dwell on the negatives, and it is important to try to be happy and positive!

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