Base

Nickname

susan

What best describes you?

Patient

Short Bio

FA officially became part of my life as a 22 year old sophomore in college. Having endured a 2.5 year saga of the unknown, the diagnosis of FA was dual relief that I was not crazy and a smidge of disappointment that I wasn’t getting something named after me. That journey of the unknown helped shape my attitude on disappointment & challenges in life. July of 2019 will mark my 23rd of living with FA. I have a 14 year old daughter and work full time as the counselor of 2 elementary schools.

How long have you or the person that you are caring for had FA?

22 years

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