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Nickname

grant-lile
What best describes you?

Patient
Short Bio

I am originally from Cape Town, South Africa, and trying to immigrate to the US to live closer my brother, who is a US Citizen. For the past twenty or more years, I have been living with issues and misdiagnosed. It was not until a visit to the Cleveland Clinic in February and some genetic testing that now I have been diagnosed with FA.
How long have you or the person that you are caring for had FA?

About 20 years, but only diagnosed 3 months ago.
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