• Breaking Down Barriers in Care Settings
  • Patient Advocacy Groups Worldwide Plan Events to Mark Rare Disease Day, Feb. 28
  • Rare Disease Groups, Patients Differ on ‘Right to Try’ Bill Before US Congress
  • Common Decency Isn’t Too Far-fetched
  • Uric Acid Levels May Be Biomarker for Friedreich’s Ataxia, Study Suggests
  • Friedreich’s Ataxia and Marriage: Dealing with the Diagnosis
  • Why a Cure Isn’t Everything to Me Anymore
  • New Analytical Method Reliably Detects Frataxin, Researchers Report
  • Pregnancy and Friedreich’s Ataxia
  • No One Knows Your Body Better than You Do
  • NORD Fundraiser Sets 7,000-Mile ‘Bike, Run or Walk’ Goal for 7,000 Rare Diseases
  • Friedreich’s Ataxia Patients Have Personality and Minor Cognitive Challenges, Study Suggests