The Friedreich’s Ataxia Research Alliance is getting closer to full enrollment in October:
Retrotope is seeking 25 additional participants, ages 12-50, in a clinical trial for the drug RT001, which is designed to protect against lipid peroxidation, the process that is believed to cause disability in many neurodegenerative diseases, including…[Read more]
Even when working from home, I find myself still having extra time just sitting around and needing to make the time pass. Recently, I’ve been wanting to find books written by disabled writers or books that feature disabled characters.
Do any of you have any good recommendations? I’d be interested to check it out!
When I attend physical therapy in person, my therapist suggested I place orthotics in my shoes to help with my stability and walking. I was able to place the orthotics in my Vans sneakers due to the wide thick sole. It has helped me tremendously.
Does anyone use orthotics for the same reason? Do you think it is beneficial?
Once you were diagnosed with FA, have you had people stop talking to you once they find out what it entails? For me, I have had a few relationships of friends or significant others that would be “scared away” when I told them of me FA and what the future may hold.
Is this has happened to you, how do you handle these situations?
Friedreich’s Ataxia News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.