[s-rishi-kumar]

That’s absolutely right ! I saw the scene and felt goosebumps when i related to myself . The person i’d be if it weren’t for FA . But , thinking about it deeper i realized that it is FA that gave me the clarity and perspective early in my life . Sure everything would have been different , but if i get cured now after experiencing the pain imagining what it would be like is awesome .

[s-rishi-kumar]

Hi . I have a brother who is 2 years younger than me . He is normal till now . But I am totally freaking out because I have been hearing almost everywhere that siblings too have FA . He is my primary support in all aspects of my life . My parents decided not to take a test for him . If anything happens in future I hope he takes it as good as I did . I couldn’t even imagine a situation like that .

[s-rishi-kumar]

I have an interesting story about that . I was diagnosed when I was 14 years old and now I am 19 . The interesting thing is that I didn’t know about FA officially until I was 18 . For some reason my parents and doctors thought it’ll be better if I don’t know about it ‘untill I reach a mature age’ . Surprisingly it worked out ! It didn’t take me long to figure it out on my own . Thanks to the use of term FA by doctors and GOOGLE ! Since then I slowly began learning about it on my own without sharing anything even with my close friends . At first it was very confusing and depressing especially when the symptoms became apparent . But the immense trust that I had in my parents got me through very quickly and I accepted the facts . One day I met a psychologist when I was 18 so that he could ‘break the truth’ , but before he said anything I told him the full story and everyone were surprised . I even remember the moment when my father was being very nervous which wasn’t his style at all and my mom feeling relieved knowing that her son can take care of himself pretty well . I believe that leaning about this myself boosted my inner strength greatly and I doubt that if I was briefed from the beginning I would’ve accepted it this quickly .