Forum Replies Created

  • patrick

    Member
    July 28, 2020 at 5:05 am in reply to: Do you your friends and family accept FA?

    Thank you. It is so good to see that there are other people struggling with that

  • patrick

    Member
    July 27, 2020 at 8:46 am in reply to: Do you your friends and family accept FA?

    for me it was very difficult and impossible to explain it to my family and friends. when i was 7 it started getting very hard for me to move. i tried to explain it for example to my parents only a few times because they always said that what i feel was normal and everyone gets lazy and tired sometimes and of course i believed them. Also they sometimes referred to my cousin that couldn’t move his legs because of an accident and had a real illness.

    a few years later i got the diagnosis because i had heart racing issues when i was getting ready for soccer training and had to go to the hospital. my Mother was very shocked but for me it was more like a relief cause now i had an explanation for my weird movements and i didn’t get excluded by the friends that already knew me anymore.
    the situation with my family was a bit more difficult. of course they where ok for example while walking with me taking a break. but mostly they saw that i could move my body pretty well when i concentrated enough.what they did not see is that i was concentrating extremely.
    then everybody accepts it when things don’t work anymore. the question for me was when do i accept that something doesn’t work anymore. for me that should and could have been earlier very often.

    thank you Frankie for posting that amazing question.

  • patrick

    Member
    January 15, 2020 at 3:47 am in reply to: Medical Marijuana Monday: the Indica strain

    In my experience the two natural strains sativa and indica are’nt very different. Maybe that’s because they’ve been cultured so they have the best effect.

    I think the most important thing in a strain are the thc and cbd levels. You should combine these two so the effects get like multiplied.

    Sadly marijuana is illegal in switzerland so i can’t choose my fav strain but just get what i get.

  • patrick

    Member
    December 12, 2019 at 4:43 pm in reply to: New weekly series: Medical Marijuana Mondays

    Especially when i’m alone i prefer to vaporize my cannabis with my pax3 vaporizer. Compared with smoking(bong,joints,pipes) this has many benefits, like it is more healthy and the smell is not so intense.

    The pax3 is very easy to handle. It is pretty expensive but if you use it everyday i think it’s definitely worth it.if you don’t have the money i recommend a flowermate product or a cheap one

    Also i sometimes enjoy it while laying in the bed. I can feel my body relax much better and smokeing in bed is NOT A GOOD IDEA 😉

  • I think it’s great that they’re doing this research and try to help us.

    But 1.5 billion $ is a lot of money and that means it will be affordable only for a few of us 🙁 i just hope they are not using the situation of being the only hope for many of us to make money.
    Fact is that people do everything for that money

  • patrick

    Member
    October 25, 2019 at 9:55 am in reply to: Cannabis/THC and FA

    I am using cannabis to treat the symphtoms of my FA since 3 years now and it works amazeingly well. I think basically it helps me and my body to calm down and not to strictly concentrate on every movement i make, which leads to less spacism, better controlled movements, less pain and many more things.

    I definitely prefer to vaporize my cannabis. That means instead of burning it, i heat it up to like 190 degrees and just breathe in the air. Its very simalar to smoking, but much more healthy 😉 sometimes i like to smoke joints that prepared my friends or i by myself with a simple rolling-machine.
    also i use different oils like cbd oil from the doctor or a self-made cannabis-coconut-oil with potent thc-cannabis.
    The effects hold much longer, my own oil like 8 hrs.

    My favorite Strains are sativas. but i like indica too.