Jon Jacobsen

About one week. Hearing improvement is on the list too now👌🏼☺️

Gunnhild, please give more information about those who started the drug-age, when they were diagnosed, physical condition …..and the supervising physician what kind of research will be performed during the time of taking the medicine?

I can film my toes😆

And also I must mention that the price is 1/3 here compared to the US🙈

Glad she is ok! Must have been so scary.
Don’t worry about preaching. Its just fine.When I truly believe in something I tend to “preach” about it too 🙂

Romans 8:18 I consider that the sufferings of this present time are as nothing compared with the glory to be revealed for us.

The question of where is God and why is he doing this to me is one that has popped into my head many times in the years since my diagnosis. As I started to pay closer attention to the things that are part of the faith and…[Read more]

My wife did it and she was in a wheelchair when she had the second one. If you have someone to help which it sounds like you do you have as good a chance of raising good kids just as anyone else. Actually you probably will do a considerably better job than most people …because of the fa. You will have a much better handle on what is important in…[Read more]

@toolman I don’t think I’d be able to handle pregnancy or carrying a newborn around or all the things babies require. I’ve thought a lot about it

Some trials I’ve been going through are too many to mention . most of which revolve around non supportive family. I have lost everything trying to be there for my wife . and I do mean everything….friends ,family, business, retirement, most recently had a small stroke and hernia so my health is included, so much stress and absolutely no help from…[Read more]

Thanks for replying ,much appreciated 👍🏽

My boyfriend & I dated for almost two years before my symptoms were severe enough to start asking questions. I’ve literally always just thought I was a clutz. I’ve been diagnosed for about 3 years now & he is literally the only person I feel 100% safe with. He can tell when I’m fatigued or getting frustrated. I know I am very lucky to have someo…[Read more]

I’ll be there also

Me too😭😍 Scared to believe it.
The norwegian drug has dosage recommendations down to 6 year olds.

There are a few side effects so everybody should really look into it before deciding to try.

The two people taking it now dont have side effects at this point. So fingers crossed!🤞🏼

I’m looking at new walker. I think its called U Step. Any feedback?

Yes they both did! We almost dont dare believing it! Energy, improved speech, toe wiggeling, normal temperature and colour in feet and hands, stronger, improved balance… I’m very excited to try for myself. I hope I dont have any side effects that stop me from taking it and fingers crossed for some effects🤞🏼

Thank you for mentioning me although I dont see myself as a writer really. I just read your last article. Now that is writing! 🙂

I started my blog having a wish to share some practical tips about managing FA. My education is physiotherapist so I thought it could benefit others.

In 2012-2013 my depression, fatigue and anxiety increased very…[Read more]

Here is the full paper, if anyone is interested in reading: https://drive.google.com/file/d/1qaEvn_0GQAbyvI0nVcaXGpaD7beigj8R/view?usp=sharing

Hmm I don’t know what happened, sorry lol:

https://drive.google.com/file/d/1Q4zZ8NIcMFszr310LC250ajPNJ1t9cOY/view?usp=sharing

If anyone would like the full journal article (only the abstract is available for free), I have linked it here. 🙂 Science should definitely be accessible to everyone and I love that FAN takes the time to report on these articles.