Michelle Smith
Forum Replies Created
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Can someone interpret the last post in English?
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I have no updates as of now! I hope to start working out by next and have more improvements. I still have the ones that I spoke about earlier but nothing new! I also have other things going on that is not FA related. The medicine is working but who knows when I will make more improvements.
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UPDATE: As of today it marks two weeks that I’ve been on Etravirin. The few improvements I had the first few days are still there. At day 5,6,7,8 and 9 I felt horrible. My symptoms seem to have gotten worse, my muscles and my joints in my fingers hurt. By day 10 I felt great!!! This is what has gotten better. easier to get out of a chair, a toilet and the bed. easier to get out the tub or being on the ground to standing. I know this sounds strange but if I drop something and my back hurts to bend over I am able to grab it with my toes and pick it up( I have not been able to do that in years). Driving my car has become easier also( I feel like I’m not as tight, more relaxed). My walking is faster on some days. I find I’m moving my body like a normal person(not all the time it comes and go’s) I defiantly feel it working!!!! I still don’t know if any of this is placebo or if will last but I’m loving it for now.
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Hey Guys! Here’s an update. I started Etravirin yesterday evening, I’ve had two doses. So far I’ve had no side effects. Well, I hope it’s not placebo effect. I feel like I have more trunk control and less tremors. Last night when I went to bed my body felt more relaxed. What I find interesting is I have neuropathy and I get shooting pains sometimes and I take potassium and it gets rid of the pain. This past week the pain has been more often. Yesterday evening I was having pain, I took my first dose of Etravirin and witin an hour the pain was gone. Coincidence, placebo I don’t know but interesting. That’s all I have right now but will update more in a couple of days.
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Chris I live in New Orleans Louisiana and have Humana Medicare
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I wanted let you all know I went to the doctor today and he agreed to let me try Etravirine, 200 mg twice a day. Went to fill it they didn’t have it in stock so I will take my first dose tomorrow evening. My insurance did pay for it but it is off label so I have to pay $460 but the insurance is paying $1200. I will look into programs to help pay the deductible. Iam beyond excited!!!
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G, how long have the other two people been talking the Etravirine? And do you know of any more improvements since you last reported?