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Michelle Smith

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@michsmith05

I have no updates as of now! I hope to start working out by next and have more improvements. I still have the ones that I spoke about earlier but nothing new! I also have other things going on that is not FA related. The medicine is working but who knows when I will make more improvements. View
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    Michelle Smith replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 11 months ago

    Can someone interpret the last post in English?

    • Profile picture of Matt Lafleur
      Matt Lafleur replied 1 year, 11 months ago

      My fault! Sorry…will do now.

  • Profile picture of Michelle Smith

    Michelle Smith replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 11 months ago

    I have no updates as of now! I hope to start working out by next and have more improvements. I still have the ones that I spoke about earlier but nothing new! I also have other things going on that is not FA related. The medicine is working but who knows when I will make more improvements.

  • Profile picture of Michelle Smith

    Michelle Smith posted an update 1 year, 12 months ago

    I have no updates as of now! I hope to start working out by next and have more improvements. I still have the ones that I spoke about earlier but nothing new! I also have other things going on that is not FA related. The medicine is working but who knows when I will make more improvements.

  • Profile picture of Michelle Smith

    Michelle Smith replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 2 years ago

    UPDATE: As of today it marks two weeks that I’ve been on Etravirin. The few improvements I had the first few days are still there. At day 5,6,7,8 and 9 I felt horrible. My symptoms seem to have gotten worse, my muscles and my joints in my fingers hurt. By day 10 I felt great!!! This is what has gotten better. easier to get out of a chair, a toilet…[Read more]

  • Profile picture of Michelle Smith

    Michelle Smith replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 2 years ago

    Hey Guys! Here’s an update. I started Etravirin yesterday evening, I’ve had two doses. So far I’ve had no side effects. Well, I hope it’s not placebo effect. I feel like I have more trunk control and less tremors. Last night when I went to bed my body felt more relaxed. What I find interesting is I have neuropathy and I get shooting pains sometim…[Read more]

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    Michelle Smith replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 2 years ago

    Chris I live in New Orleans Louisiana and have Humana Medicare

  • Profile picture of Michelle Smith

    Michelle Smith replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 2 years ago

    I wanted let you all know I went to the doctor today and he agreed to let me try Etravirine, 200 mg twice a day. Went to fill it they didn’t have it in stock so I will take my first dose tomorrow evening. My insurance did pay for it but it is off label so I have to pay $460 but the insurance is paying $1200. I will look into programs to help pay t…[Read more]

  • Profile picture of Michelle Smith

    Michelle Smith replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 2 years ago

    G, how long have the other two people been talking the Etravirine? And do you know of any more improvements since you last reported?

  • Profile picture of drita

    drita and Profile picture of Michelle SmithMichelle Smith are now friends 2 years ago

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    Michelle Smith posted a new activity comment 2 years, 1 month ago

    Thank you

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  • Profile picture of Michelle Smith

    Michelle Smith posted a new activity comment 2 years, 1 month ago

    Thank you

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  • Profile picture of Michelle Smith

    Michelle Smith became a registered member 2 years, 1 month ago

    • Profile picture of Matt Lafleur
      Matt Lafleur replied 2 years, 1 month ago

      Hey Michelle, great to see you!
      Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. Y…[Read more]

      • Profile picture of Michelle Smith
        Michelle Smith replied 2 years, 1 month ago

        Thank you

    • Profile picture of Frankie Perazzola
      Frankie Perazzola replied 2 years, 1 month ago

      Hi Michelle! Thank you for signing up and welcome to the FA forum!

      • Profile picture of Michelle Smith
        Michelle Smith replied 2 years, 1 month ago

        Thank you

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