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Luciana Carbonari

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@luciana-carbonari

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    Luciana Carbonari replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 8 months ago

    Rogier, no side effects

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    Luciana Carbonari replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 8 months ago

    Good afternoon everyone! As I said, my daughter started taking Etravirine on 11/03 100mg 2x a day. The improvements that we experienced following Doramas: better motor coordination, improvement in balance, she was having a hard time walking on her walker, now she started to get better walking, knee bending, raising her feet, speech improved a…[Read more]

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    Catherine Vasquez Ortiz and Profile picture of Luciana CarbonariLuciana Carbonari are now friends 1 year, 9 months ago

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    Naeem and Profile picture of Luciana CarbonariLuciana Carbonari are now friends 1 year, 9 months ago

  • Profile picture of Luciana Carbonari

    Luciana Carbonari replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 10 months ago

    My daughter started taking etravirine day 11/03, imported and paid IN BRAZIL CURRENCY (REAL r $) r $ 1587.00. Follows the diary that my daughter is doing:
    early Etravirina- 2X ​​remedy a day – 100mg

    11/03
    During the day I started a physical therapy protocol with transcranial stimulation (in which I take the shock cord and cerebellum for hal…[Read more]

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    Luciana Carbonari posted a new activity comment 1 year, 10 months ago

    Thank you!

    • Profile picture of Luciana Carbonari

      Luciana Carbonari posted a new activity comment 1 year, 10 months ago

      Thank you!

      • Profile picture of Luciana Carbonari

        Luciana Carbonari replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 10 months ago

        Olá! obrigada por me aceitarem. Minha filha de 20 anos tem FA e vai começar a tomar o Etravirine, estamos aguardando o remédio chegar… Estamos fazendo vídeos do antes do remédio, para comparar com o depois… Estamos muito ansiosos… Somos do Brasil!!!!

        Hello! thank you for accepting me. My 20 year old daughter has FA and will start taki…[Read more]

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        Luciana Carbonari became a registered member 1 year, 10 months ago

        • Profile picture of Matt Lafleur
          Matt Lafleur replied 1 year, 10 months ago

          Hey Luciana,
          Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of ou…[Read more]

        • Profile picture of Frankie Perazzola
          Frankie Perazzola replied 1 year, 10 months ago

          Hey Luciana! Thank you for signing up and welcome to the FA forum!

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