[Katie Griffith]

I love that people all over could tune in! It was so inspirational 🙂

[Katie Griffith]

Thanks for sharing, Christina! I’ll have to order that one as well.

[Katie Griffith]

Thank you for the recommendations, Danita! I read Kyle Bryant’s book and loved it. I’ll have to check out “Living the Decision!”

That sounds very interesting, Nelda! I’m sure it will still resonate. Thanks for the recommendation. Is it titled “How Lucky?”

[Katie Griffith]

So glad that Becca had Kringle as a companion and that he continued to bring joy to your family for many years. Very sorry for your losses 🙁

[Katie Griffith]

How amazing and helpful!

[Katie Griffith]

I love the fall! Although in Alabama, it can take a while to show up 😂
I am right there with you, Suzi 🥵

[Katie Griffith]

Thank you for sharing your perspective, Christina! I try to remember that people who love you want to help you if they can. I know your husband is a gift to you!

[Katie Griffith]

I have a friend whose children have SMA. She was a help to me in the early days of my son’s diagnosis of FA. It is such a gift to find people who can really understand. I hope to be able to do that for others as well!

[Katie Griffith]

My son’s voice issue was his first symptom of FA. He saw an ENT and had voice therapy. It didn’t help. He was diagnosed a couple of years later with FA. His voice is very hoarse and it affects his quality of life. He is scheduled to have implants put in his vocal cords next week. Praying it will help 🙏🏻

[Katie Griffith]

We got a placard for my son. In Alabama, where we live, it was cheaper and you could get 2. So helpful!

[Katie Griffith]

My son enjoys playing his PlayStation with friends online!

[Katie Griffith]

Great suggestions! Having a community that understands is huge as well as hope and joy even in hard circumstances. Keep fighting!

[Katie Griffith]

Thank you, Karina! He is doing well. We are thankful! Acts of kindness just make every day better. We have had so many of them lately! 🙂

[Katie Griffith]

Thank you, Christina!

[Katie Griffith]

It is interesting how everyone presents differently. My son didn’t get diagnosed until a few years after his voice issues began. It can be such a long process! Thank you for sharing your story 🙂

[Katie Griffith]

I’m glad you have found some support, Karina! I agree, it is challenging to have the time when you are raising a family. So thankful for good Physical Therapists! My son has a great one who is so helpful and supportive as well.
So glad you are part of the forum 😊

[Katie Griffith]

Thank you 😊

[Katie Griffith]

I agree! One of the perks of social media for sure.

[Katie Griffith]

RideATAXIA is amazing!

I love your 5K idea! I hope y’all will be able to have it next year 🙂

[Katie Griffith]

It was so helpful during COVID to give a way to have interaction with friends as well!

[Katie Griffith]

That’s great, Christina! My son is part of that study as well at UF. A competitive spirit helps, I’m sure 🙂

[Katie Griffith]

Thanks for the helpful tips, Christina! It is hard to believe what’s promised online. That’s why I love travel bloggers who experience it and give the pros and cons!

[Katie Griffith]

Thank you for your response, Manu! I am so very sorry to hear of your difficulty in finding help in Italy 🙁 What is your favorite travel memory?

[Katie Griffith]

I’m so glad it was helpful, Christina!

My son Noah used a beach wheelchair once when we were on a Royal Caribbean cruise, and it was amazing!