Replies – Forums – Katie Griffith – Page 4 – Friedreich's Ataxia News Forums

Katie Griffith

Member

March 30, 2022 at 8:08 am in reply to: Off topic but I need help

Hello, Davide! If you reach out to the Freidreich’s Ataxia Research Alliance (FARA), they may be able to assist you. Here is their website with some contact information:

https://www.curefa.org/contact

Katie Griffith

Member

March 29, 2022 at 8:42 pm in reply to: Scholarship Opportunity

Thank you for sharing this information, Karla!!

Katie Griffith

Member

March 22, 2022 at 8:24 am in reply to: Aircraft and Accessibility

That’s amazing!!

Katie Griffith

Member

February 26, 2022 at 6:57 am in reply to: Motivational Monday – The Ataxian

Such a great documentary! My family and I plan to rewatch this weekend.

Katie Griffith

Member

February 10, 2022 at 4:02 pm in reply to: Rare Disease Day Video

Love seeing all these amazing faces and hearing their stories!

Katie Griffith

Member

February 10, 2022 at 9:47 am in reply to: Free At-Home COVID-19 Tests

Thanks for sharing your experience, Karina! Hope you all are feeling better.

My son who has FA used an at home test recently when he had mild symptoms and it was positive. Not sure if it depends on the brand or not.

Katie Griffith

Member

February 9, 2022 at 11:11 am in reply to: Awaiting Results

That’s great that you and your family were able to get involved right away! Meeting other people going through the same thing makes such a big difference!

Katie Griffith

Member

February 8, 2022 at 10:37 am in reply to: Free At-Home COVID-19 Tests

I received mine in the mail! Very easy process.

Katie Griffith

Member

January 27, 2022 at 6:52 pm in reply to: Posture Cane

That’s very cool!

Katie Griffith

Member

January 19, 2022 at 7:59 am in reply to: Motivational Monday – Martin Luther King Jr.

I love that quote too! Also love “Darkness cannot drive out darkness, only light can do that. Hate cannot drive out hate, only love can do that.”

Katie Griffith

Member

January 13, 2022 at 9:21 am in reply to: RideATAXIA Gainesville

That’s a great idea, Christina!!

Katie Griffith

Member

January 5, 2022 at 8:26 am in reply to: Fitness Goals

Hey, Jarrod! I think what has helped motivate my son was when we went together. It sounds like what you are already doing, but just having a ride and someone to be there with helped him. Maybe just talk through it and set up a schedule ahead of time that he agrees to. I definitely need some accountability myself this year!