Jesus Rodriguez

I’m thankful for life even though there’s high and lows I thank God for life itself. Also because I have hope in Christ Jesus who died for my sons and rose again on the third day defeating death!

I’m working on experienceing new things because one of the reason I don’t go out was the fear of exactly what you talked about. I have found that mostly every place I’ve been to is handicap accessible.

I would say to just do easy stuff and try not to push yourself too hard.

My workout routine hasent really changed its just that I can’t push myself like before. I roll around my block to work on stamina and get my heart working. My standing frame helps keep keep my legs as strong as they can be.

Living in southern California seems like it’s always Sunny but the weather’s weird out here. It’s hot when the 🌞 out and cold at nught. The air quality has been ass because of 🔥. My body doesn’t really handle season change because it’s never stable. I do my best to schedule for the day as I’m in it.

Yeah i do also. My diet isn’talmi that bad but I can make it better. I don’t eat any candy or drink soda and I avoid processed foods. Instead of eating lunch I drink green shakes and eat almonds, cashews or peanuts. It’s a pain in the ass because I recently had my a1c checked and it’s 8.4. Three months ago it was 6.1. I have sacrificed not eating…[Read more]

A year ago I was in good condition to push myself. Now that’s not the case but I’m still as active as I can be.

Hell yes I would love to attend an FA event near me!

My favorite season is fall and here in So Cal it’s warm during the day and cool at night. My routine changes rarely only when I’m sick.

Laughter truly is the best medicine.

For me high school sucked but to be fair there were great moments. I was diagnosed in freshman year so in that was bad timing. I had to struggle with walking around campus so I eventually started to use a wheelchair. It was defective a trip and crap you have to deal with and I often want to go back. God willing I still have more years to grow not…[Read more]

I like to roll around my neighborhood for at least a half-hour. So when it’s raining it sucks cuz I’m stuck in the house.

What helps me with fatigue is not stressing and having a healthy mind. Having a schedule helps also and I know things change suddenly so I do my best.

I sleep in a ball. Like if I was still in my mom’s woumb. I can’t sleep if I’m not in that position and I just feel comfortable in that position. If I pay on my back with my legs extended they fold on me it’s annoying because I’m almost asleep. I’m a crazy ass sleeper too so when I wake up I’m always in different positions.

I do consider myself to be hopeful. My faith helps me be hopeful. What I love about my faith, specifically in Christ, is that you can test and see that he’s faithful. For me being pessimistic is healthy to be just seek hope.

I took a break from PT because I was told I could do the things I do in PT at home. They we’re getting busy. (S/O to all PT’s!) It was beneficial and am looking forward to go back next year.

I feel fatigue when it’s humid out or hot. Southern California is where I live and the summer has sucked so I haven’t gone outside that much. I nap after I work out and doing that consistently seems to help me with fatigue.

I usually get sick when winter’s over. It was pretty bad this year I thought I wast I was going to be in the hospital for a while but thankfully I didn’t. I felt like crap for four days and it took me a week to recuperate. I don’t like taking meds unless I need to like this prior time. I usually drink tea with honey and use Vicks.

When I was a freshman in high school I used a cane, crutches, and a Walker. At that age I was ashamed that I needed to use those things. The next year of high school i had to start using a wheelchair. Mylegs weren’t strong enough to walk even on mobility aids. I’m 28 now and I’m still learning how to do life with FA but I know I’m not in this fight alone.

The airport TSA is good they just do their job and it goes by smoothly. Almost all the workers are helpful. I say almost all because one worker was pretty rude. I went from LAX to Minnesota. On the airplane the staff was really helpful and my experience went better than I expected. Make sure to bring a waterbottle on your hand and wear comfortable…[Read more]