Jesus Rodriguez

I usually get sick when winter’s over. It was pretty bad this year I thought I wast I was going to be in the hospital for a while but thankfully I didn’t. I felt like crap for four days and it took me a week to recuperate. I don’t like taking meds unless I need to like this prior time. I usually drink tea with honey and use Vicks.

When I was a freshman in high school I used a cane, crutches, and a Walker. At that age I was ashamed that I needed to use those things. The next year of high school i had to start using a wheelchair. Mylegs weren’t strong enough to walk even on mobility aids. I’m 28 now and I’m still learning how to do life with FA but I know I’m not in this fight alone.

The airport TSA is good they just do their job and it goes by smoothly. Almost all the workers are helpful. I say almost all because one worker was pretty rude. I went from LAX to Minnesota. On the airplane the staff was really helpful and my experience went better than I expected. Make sure to bring a waterbottle on your hand and wear comfortable…[Read more]

I appreciate this! You gave me something to speak to my mom about.

I like to count my blessings and realize what I’m going through there is light at the end of the tunnel. My faith helps a lot but I also love to talk to others and cry and laugh and uplift others out.

I wish I would’ve kept playing the guitar. I stopped because I was too lazy to practice. I needed this message to never give up thank you Sean!!!

I appreciate your articles! Yes I’m an empathetic person. It’s a struggle for me at times though, living with FA and the struggles that come with. I love to uplift others and to motivate them to do the best they they can do.

I haven’t been to get my heart checked in three years also but plan to get an appointment soon.

Common sense for me helps to do the things I need to do. But, one of my biggest expectations I have is to execute my daily schedule. I feel it’s just right.

Good read. Well said and a good reminder on naming someone or something and not letting us lose ourselves because of it. I feel like my name suits me well.

I listen to mostly everything but right now I listen to NF. If you make a playlist I would give it a listen.

I don’t have difficulty physically but it’s more feeling not “normal”.

Yes I dislike summertime. I drink water mostly all the time. I sweat without being active so I schedule when I workout and I usually go outside at sunset.

I listen to upbeat music too. I haven’t tried bpm but I’ll give it a try!

I haven’t been in a situation like this. Usually I avoid going out because of fear of accessibility.

I go to bed at 11:00 pm and wake up at 8:00 am. I do take a nap during the day only for an hour or 30 min or sometimes 20 minutes. Usually I take a nap after I workout and my workouts are 40 to an hour long. It helps me to refresh myself too so that seems to help.

I agree with Egan.