Forum Replies Created

  • melinda

    Member
    December 11, 2021 at 12:46 pm in reply to: It’s the Most Wonderful Time of the Year, or Is It?

    This is Melinda Younes I am texting you to let you know I don’t have Freidreichs Ataxia. I do have Ataxia but I have Parkinson’s. I seen a neurologist that specializes in movement disorders. She is positive I have Parkinson’s with Ataxia. I am so glad to hear about Freidreichs Ataxia and I have have been very vocal about y’all here in Georgia and Tennessee. No one in these areas had never heard of Freidreichs. So I am praying that this has been more exposure to Freidreichs. All you guys are very blessed special to us all me and everyone that I have told. I even been to 3 hospitals for different issues and they had never heard of this. I pray more places in all these places will hear and more will donate to Freidreichs. I would like to keep the news letter and FA app if I can. My oldest daughter works at a large hospital in Nashville and have been interested in this disease look it up and learned something new. God Bless you all I know a little more than I had ever heard of.

     

  • melinda

    Member
    November 13, 2021 at 11:00 am in reply to: Thanksgiving

    Holidays are different now. I am the oldest now cause a lot have past away. My husband and myself are the elderly. He still has his mother and her sister Our children are married and we have grandchildren which are busy, one grandson is in the Navy. This year I don’t know and they are not saying anything. It will be interesting or nothing at all. So far I am the only one with Freidreichs Ataxia. I am praying that I am the last one. You all are the bravest people (except our military) I have seen. This is not easy and the ones I have seen on here and the FA app are always smiling or laughing. It makes this 58 (59) in March 2022, year old woman smile. I thank you all for what you have done for us and praying we are able to help “this new year”do something with you all and get to know you all.

  • melinda

    Member
    October 2, 2021 at 8:00 pm in reply to: Motivational Monday – Rest

    I love to sit outside on my back deck and watch the birds, squirrels and chipmunks while setting in the sun. No worries, no TV, wave and talk to neighbors out walking or just wave and smile. We have our own Barney Fife here We love it…. Smile