Base

Name

Grant Lile

Nickname

grant-lile

Year of Birth

1980

Gender

Male

Location

Springdale, Arkansas (from Cape Town, South Africa)

Relationship

Patient

Short Bio

I am originally from Cape Town, South Africa, and trying to immigrate to the US to live closer my brother, who is a US Citizen. For the past twenty or more years, I have been living with issues and misdiagnosed. It was not until a visit to the Cleveland Clinic in February and some genetic testing that now I have been diagnosed with FA.

How did you hear about us?

FA Website

How long have you or the person that you are caring for had FA?

About 20 years, but only diagnosed 3 months ago.

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