frankie-p
Forum Replies Created
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Hi Grant! i have personally not had this problem but I’ve definitely heard others talk about it!
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I want to hear about others’ experiences on this topic!
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Thank you so much!
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Do you think you are falling because your legs are fatigued and tired? Or is it because the walker itself is unstable and goes from side to side?
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One of the best feelings ever! LOL
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Thank you for your response! That makes a lot of sense, if I am not working out with a trainer, I mostly stick to machines as well.
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Love to hear about other peoples stories. It definitely sounds tougher for someone like you who experienced symptoms at an earlier age. That must’ve been extremely difficult. I think the family is the hardest to get to accept your illness 100%. That’s just what I’ve experienced also. Keep going!
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Wow! Your story is kind of incredible. I know sometimes it can be difficult to pat yourself on the back or give yourself kudos but you really need to when it comes to addressing your accomplishments! You sound like an incredible human being.
No matter what you think about yourself, what you said is just proof of the strong and resilient person you are. That is extremely impressive regardless of how much you work. Dealing with FA is very difficult so to be able to receive a PhD and raise two kids on your own is incredible. Please don’t be too hard on yourself. I know it’s easier said than done but your accomplishments are everything!
I truly admire your hard work and perseverance. I hope that you can find a hobby or activity that you truly enjoy to give yourself a little break every now and then<3
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I think that CBD products are so beneficial. Glad to hear you are experiencing relaxation and seeing benefits from it. I’m also excited to hear about these new gummy’s because elderberry is used in so many different homeopathic remedies. Make sure to keep us posted!
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The gym! Because it’s so essential to my existence, can’t wait to enjoy a full work out once again!
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I love it but don’t because waking up that early every time discourages me.
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Same here! Feels good to be back!
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Hi Katherine!
Although I may not be able to scientifically answer your question, I think that you were at risk just like the “normal“ population.
From previous conversations and talking to other FA patients, whenever a person with FA contracts a common cold or flu, symptoms seem to get worse. Although I don’t think you are more susceptible to catching it, I think FA symptoms will affect your body if you do catch coronavirus.
Is there a member, I am not a doctor and this is from my own personal information. Please contact your health professional via email or appointment to ask more questions and to get a better idea. I hope this somewhat helps
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So excited for you to start meeting that community!! Hopefully the rain passes. Lol can’t wait to meet you!
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Yum!
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That’s the normal amount. I go so often because of clinical trials, thats all.
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@janebriscoe that’s so great to hear! Hope all is well!
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@janebriscoe that’s so great to hear! Hope all is well!
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You are saying you sleep 12 hours?
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Yes! I agree with making my bed, it helps me feel like the rest of my room is clean.
For me, I have to make small lists of what I want to accomplish during the day and then I’ll break them by importance. I do the most important things first so in case I get tired or something happens like I need to rest, at least I have already accomplished the big things and I can add the rest to my list the next day. -
The main kind of gum I chew is orbit. I personally have never had an issue with gum upsetting my stomach. That might be a question for your doctor to see if maybe you have an allergy or why it has a reaction with your body. Let me know how it goes!
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Karina, this seems common amongst the FA Community. Thank you for sharing! With all of this that has happened, are you happy or content?
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Yes!! Love hot showers!
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I like the word welcome. Thank you for sharing! I agree, I don’t think it will ever be 100% either