• Hi Frankie

    I’ve suffered from depression at many points but have not found an anti-depressant I can tolerate. I find the side effects are amplified for me. My doctor told me this may be because I have a neurological condition. The side effects do not wear off and after a month I could not persevere. My vision is very blurred (my eyes will not…[Read more]

  • I love rides too. At a lot of parks I’m told to go in at the exit. This is excellent as we can avoid the queues! It used to be as simple as if I can transfer to the seat then I can go on the ride (my wheelchair was looked after by the attendant and ready there at the exit when the ride was over). Recently at larger theme parks they will not let me…[Read more]

  • David changed their profile picture 1 year, 3 months ago

  • David replied to the topic Siblings in the forum Relationships & FA 1 year, 3 months ago

    I have 4 siblings (3 sisters and 1 brother) and 3 of us (me, 1 sister and my brother) have FA.

    Both are older than me (11 yrs and 15 yrs). We all had quite late onset, with no symptoms until we were each in our 20s.

    It was, and still is, scary to see their progression.

  • David became a registered member 1 year, 8 months ago

    • Hey David, I look forward to hearing from you on here!
      Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly w…[Read more]

    • Hi David! Thank you for signing up and welcome to the FA forum!