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      As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models and take ownership of their care. This change can seem daunting for patients and parents, especially when dealing with rare disorders, like FA.

      Join NORD to learn how to plan for this change and to hear from a mother and son, who will share their experiences as a family living with Congenital Bilateral Perisylvian Syndrome (CBPS).

      To learn more and register, click below:

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