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Stories from rare disease community members
Rare Disease Day was on Saturday, February 28th, and to celebrate, Bionews (The parent company of FA News) did something very special this year!
Bionews featured members of various rare disease communities in a series of videos. These videos focus on topics such as advocacy, mental health, and caregiving. You can see all of the videos here.
I personally loved Tomisa Starr’s video about different ways she calms her emotions by using different methods to manage her anxiety and stress levels.
Looking at these videos, are there any that stand out to you the most? Is there a story that resonates with you as you think about your life with FA?
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