• Living With FA

  Rare Disease Week – how are you celebrating?

  Posted by Christina Cordaro on February 24, 2020 at 10:00 am

  

  Below are some local and easy ways to get involved!

  • Wear striped clothing and/or accessories (the zebra is the US symbol of rare disease) in support of the rare disease community on Feb 29.
  • Take a selfie and post a message to social media. Don’t forget to tag #RareDiseaseDay and #CureFA
  • Change your profile photo on social media to recognize Rare Disease Day
  • Plan an awareness event with a community partner (work, school, civic, religious)
  • Pitch your personal story to a local media outlets or write a Letter to the Editor
  • Call or email your elected officials, especially on Hill Day, Thursday, Feb 27

  Christina Cordaro replied 4 years, 2 months ago 0 Member · 0 Replies

  • awareness
  • FA Awareness Day
  • rare disease day
• 0 Replies

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