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Rare Disease Day and FA Advocacy
In February, it is a time to raise awareness of rare diseases as a global health challenge. 300 million people worldwide live with a rare disease, and FA is one of them. Rare Disease Day is always held on the last day of February.
How do you participate? Do you get involved in Rare Disease Week or via any social media platforms?
Below is a link on how to get involved by sharing your experiences and story of living with FA: https://www.rarediseaseday.org/#share-your-colours
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